Section 8: Where to Get More Information
Talk with your health care team to learn more about kidney dialysis, transplants, and your situation.
Kidney organizations
There are special organizations that can give you more information about kidney dialysis and kidney transplants. Some of these organizations have members who are on dialysis or have had kidney transplants and who can give you support.
American Association of Kidney Patients
3505 East Frontage Road, Suite 315
Tampa, Florida 33607
1-800-749-2257
American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, Maryland 20852
1-800-638-8299
Dialysis Patient Citizens
900 7th Street, NW, Suite 670
Washington, DC 20001
1-866-877-4242
National Kidney Foundation, Inc.
30 East 33rd Street
New York, New York 10016
1-800-622-9010
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, Maryland 20892
1-800-891-5390
www.kidney.niddk.nih.gov
End-Stage Renal Disease (ESRD) Networks
You can call your local ESRD Network Organization (more info) to get information about the following:
■ Dialysis or kidney transplants
■ How to get help from other kidney-related agencies
■ Problems with your facility that aren’t solved after talking to facility staff
■ Location of dialysis facilities and transplant centers
Your ESRD Network makes sure that you’re getting the best possible care and keeps your facility aware of important issues about kidney dialysis and transplants.
State Health Insurance Assistance Programs (SHIP)
Call your State Health Insurance Assistance Program (more info) if you have questions about:
■ Medigap policies
■ Medicare health plan choices
■ Filing an appeal
■ Other general health insurance questions
State Survey Agency
The State Survey Agency inspects dialysis facilities and makes sure that Medicare standards are met. Your State Survey Agency can also help you if you have a complaint about your care. Visit www.medicare.gov/contacts to get the phone number of your State Survey Agency. You can also call 1-800-MEDICARE (1-800-633-4227). TTY users should call 1-877-486-2048. Your calls and name will be kept private.
Other Medicare products for kidney patients
To read or print a copy of these booklets, visit www.medicare.gov/publications. You can also call 1-800-MEDICARE (1-800-633-4227) to find out if a copy can be mailed to you. TTY users should call 1-877-486-2048.
3. “Dialysis Facility Compare”
This brochure gives you information about the Dialysis Facility Compare tool at www.medicare.gov/dialysis.
4. “Medicare’s Coverage of Dialysis and Kidney Transplant Benefits: Getting Started”
This brochure explains basic Medicare benefits for people with kidney disease.
5. “Medicare for Children with End-Stage Renal Disease”
This brochure gives information about Medicare coverage for children with permanent kidney failure.
Important phone numbers
ESRD Networks and State Health Insurance Assistance Program phone numbers are found here. At the time of printing, these phone numbers were correct. Phone numbers sometimes change. To get the most updated phone numbers, visit www.medicare.gov/contacts. You can also call 1-800-MEDICARE.
State Health Insurance Assistance Program by State
Alabama . . . . . . . . . . . 1-800-243-5463
Nebraska. . . . . . . . . . . 1-800-234-7119
Alaska . . . . . . . . . . . . . 1-800-478-6065
Nevada . . . . . . . . . . . . 1-800-307-4444
American Samoa . . . . Not available
New Hampshire . . . . 1-866-634-9412
Arizona . . . . . . . . . . . . 1-800-432-4040
New Jersey . . . . . . . . . 1-800-792-8820
Arkansas. . . . . . . . . . . 1-800-224-6330
New Mexico . . . . . . . 1-800-432-2080
California . . . . . . . . . . 1-800-434-0222
New York . . . . . . . . . . 1-800-701-0501
Colorado. . . . . . . . . . . 1-888-696-7213
North Carolina . . . . . 1-800-443-9354
Connecticut . . . . . . . . 1-800-994-9422
North Dakota. . . . . . . 1-888-575-6611
Delaware. . . . . . . . . . . 1-800-336-9500
Ohio . . . . . . . . . . . . . . 1-800-686-1578
Florida. . . . . . . . . . . . . 1-800-963-5337
Oklahoma . . . . . . . . . 1-800-763-2828
Georgia . . . . . . . . . . . . 1-866-552-4464
Oregon . . . . . . . . . . . . 1-800-722-4134
Guam . . . . . . . . . . . . . 1-671-735-7388
Pennsylvania . . . . . . . 1-800-783-7067
Hawaii. . . . . . . . . . . . . 1-888-875-9229
Puerto Rico . . . . . . . . 1-877-725-4300
Idaho . . . . . . . . . . . . . . 1-800-247-4422
Rhode Island . . . . . . . 1-401-462-0510
Illinois. . . . . . . . . . . . . 1-800-548-9034
South Carolina . . . . . 1-800-868-9095
Indiana . . . . . . . . . . . . 1-800-452-4800
South Dakota . . . . . . 1-800-536-8197
Iowa. . . . . . . . . . . . . . . 1-800-351-4664
Tennessee . . . . . . . . . . 1-877-801-0044
Kansas. . . . . . . . . . . . . 1-800-860-5260
Texas . . . . . . . . . . . . . . 1-800-252-9240
Kentucky. . . . . . . . . . . 1-877-293-7447
Utah. . . . . . . . . . . . . . . 1-800-541-7735
Louisiana . . . . . . . . . . 1-800-259-5300
Vermont . . . . . . . . . . . 1-800-642-5119
Maine . . . . . . . . . . . . . 1-877-353-3771
Virgin Islands . . . . . . 1-340-772-7368
Maryland . . . . . . . . . . 1-800-243-3425
Virginia . . . . . . . . . . . 1-800-552-3402
Massachusetts . . . . . . 1-800-243-4636
Washington . . . . . . . . 1-800-562-6900
Michigan. . . . . . . . . . . 1-800-803-7174
Washington D.C.. . . . 1-202-739-0668
Minnesota. . . . . . . . . . 1-800-333-2433
West Virginia . . . . . . 1-877-987-4463
Mississippi . . . . . . . . . 1-800-948-3090
Wisconsin. . . . . . . . . . 1-800-242-1060
Missouri . . . . . . . . . . . 1-800-390-3330
Wyoming . . . . . . . . . . 1-800-856-4398
Montana . . . . . . . . . . . 1-800-551-3191
ESRD Networks by State
Alabama . . . . . . . . . . . 1-877-936-9260
Montana . . . . . . . . . . . 1-800-262-1514
Alaska . . . . . . . . . . . . . 1-800-262-1514
Nebraska. . . . . . . . . . . 1-800-444-9965
American Samoa . . . . 1-800-232-3773
Nevada . . . . . . . . . . . . 1-800-783-8818
Arizona . . . . . . . . . . . . 1-800-783-8818
New Hampshire . . . . 1-866-286-3773
Arkansas. . . . . . . . . . . 1-800-472-8664
New Jersey . . . . . . . . . 1-888-877-8400
California . . . . . . . . . . 1-800-637-4767
New Mexico . . . . . . . 1-800-783-8818
. . . . . . . . . . . . . . . . . . . 1-800-232-3773
New York . . . . . . . . . . 1-800-238-3773
Colorado. . . . . . . . . . . 1-800-783-8818
North Carolina . . . . . 1-800-524-7139
Connecticut . . . . . . . . 1-866-286-3773
North Dakota. . . . . . . 1-800-973-3773
Delaware. . . . . . . . . . . 1-800-548-9205
Ohio . . . . . . . . . . . . . . 1-800-456-6919
Florida. . . . . . . . . . . . . 1-800-826-3773
Oklahoma . . . . . . . . . 1-800-472-8664
Georgia . . . . . . . . . . . . 1-800-524-7139
Oregon . . . . . . . . . . . . 1-800-262-1514
Guam . . . . . . . . . . . . . 1-800-232-3773
Pennsylvania . . . . . . . 1-800-548-9205
Hawaii. . . . . . . . . . . . . 1-800-232-3773
Puerto Rico . . . . . . . . 1-888-877-8400
Idaho . . . . . . . . . . . . . . 1-800-262-1514
Rhode Island . . . . . . . 1-866-286-3773
Illinois. . . . . . . . . . . . . 1-800-456-6919
South Carolina . . . . . 1-800-524-7139
Indiana . . . . . . . . . . . . 1-800-456-6919
South Dakota . . . . . . 1-800-973-3773
Iowa. . . . . . . . . . . . . . . 1-800-444-9965
Tennessee . . . . . . . . . . 1-877-936-9260
Kansas. . . . . . . . . . . . . 1-800-444-9965
Texas . . . . . . . . . . . . . . 1-877-886-4435
Kentucky. . . . . . . . . . . 1-800-456-6919
Utah. . . . . . . . . . . . . . . 1-800-783-8818
Louisiana . . . . . . . . . . 1-800-472-8664
Vermont . . . . . . . . . . . 1-866-286-3773
Maine . . . . . . . . . . . . . 1-866-286-3773
Virgin Islands . . . . . . 1-888-877-8400
Maryland . . . . . . . . . . 1-866-651-6272
Virginia . . . . . . . . . . . 1-866-651-6272
Massachusetts . . . . . . 1-866-286-3773
Washington . . . . . . . . 1-800-262-1514
Michigan. . . . . . . . . . . 1-800-973-3773
Washington D.C.. . . . 1-866-651-6272
Minnesota. . . . . . . . . . 1-800-973-3773
West Virginia . . . . . . 1-866-651-6272
Mississippi . . . . . . . . . 1-877-936-9260
Wisconsin. . . . . . . . . . 1-800-973-3773
Missouri . . . . . . . . . . . 1-800-444-9965
Wyoming . . . . . . . . . . 1-800-783-8818