Human Genetic Variation by National Institute of Health - HTML preview

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Introduction to

Human Genetic Variation

This module has two central objectives. The

the practice of medicine, and it is vital that citizens

first is to introduce students to major concepts

recognize these changes and are prepared to deal

related to human genetic variation. Homo sapiens

with them. Being prepared involves understanding

comprises a single species, yet the more than

the basic science that underlies new medical

6.9 billion of us alive today, and the millions

practices and therapies and recognizing the

who preceded us following the emergence of fully

complex issues and questions that some of these

modern humans some 150,000 years ago, are a

procedures and therapies raise. Thus, students

diverse lot. One look at the students who sit in

will have the chance to think about how the

your class each day is all you need to confirm

detailed analysis of human genetic variation

that fact. The module’s first objective is to help

is already changing their lives.

students recognize and understand this variation.

If recognizing human variation is common, it is

The second objective is to convey to students the

not new; certainly our ancestors realized that no

relationship between basic biomedical research

two humans are identical. Nevertheless, biologists

and the improvement of personal and public

before Charles Darwin subscribed to what Ernst

health. The knowledge that scientists gained as

Mayr called essentialist thinking: the notion that

they sequenced the human genome is changing

each species is defined by an invariant type that

limits the ability of its members to vary too much

from the essential nature of the species. Among

Darwin’s great insights was the recognition that

the essentialist view is incorrect—the members of

any given species are actually highly variable—

and that some variations within a species will confer

selective advantage on those individuals that possess

them. This variation within species makes

differential selection, and therefore evolution,

possible. Mayr called this view population

thinking, and it pervades modern biology.

Darwin, however, even while working as Gregor

Mendel’s contemporary, was confounded by his

inability to identify the root source of biological

variation or the mechanisms by which those

variations are transmitted to subsequent generations

of organisms within the same species. The

rediscovery of Mendel’s work in the early 1900s

provided those answers, and the reconciliation

of Mendelism and Darwinism in the modern

Figure 1. Humans are a genetically diverse lot. How

synthesis of evolution in the 1930s and 1940s

will understanding this diversity at the molecular level

formed the basis for the biology we practice and

change our lives?

teach today.

1

Human Genetic Variation

The identification of DNA as the genetic material

• Studying the genetic and environmental factors

in the early 1940s and the elucidation of its

involved in multifactorial diseases will lead to

structure about a decade later opened the way for

improved diagnosis, prevention, and treatment

an analysis of genetic variation at the molecular

of disease.

level. That analysis proceeds at breakneck speed

• Our growing understanding of human genetic

today, propelled by a host of powerful new

variation will allow us to identify genes

techniques in molecular biology.

associated with common diseases such as

cancer. Genetic testing to identify individuals

This module focuses on our progress in analyzing

who have variations that make them

human genetic variation and the impact of that

susceptible to certain diseases can help people

analysis on individuals and society. There are many

make decisions in uncertain circumstances and

concepts we could have addressed, but we have

holds the prospect for more effective prevention

chosen, with the help of a variety of experts in

and treatment. However, this capability also

this field, a relatively small number for exploration

raises difficult questions about the uses of

by your students. Those concepts follow.

genetic information—questions that illustrate

• Humans share many basic characteristics, but

the personal and social implications of

there is a wide range of variation in human

biological research.

traits. Most human traits are multifactorial:

They are influenced by multiple genes and

We hope the module’s five lessons will be effective

environmental factors.

vehicles for carrying these concepts to your

• The ultimate source of genetic variation

students. Although the activities contain much

is differences in DNA sequences. Most of

interesting information about various aspects of

those genetic differences do not affect how

human genetics, we suggest that you focus your

individuals function. Some genetic variation,

students’ attention on the major concepts the

however, is associated with disease, and some

module was designed to convey. The concluding

improves the ability of the species to survive

steps in each lesson are intended to focus the

changes in the environment. Genetic variation,

students’ attention on those concepts as the lesson

therefore, is the basis for evolution by natural

draws to a close.

selection.

• One of the benefits of understanding human

genetic variation at a molecular level is its

practical value for helping us understand and

treat disease. The development of effective

gene-based therapies is an exciting outcome

of human genetic research. These therapies,

however, are potentially many years away for

many diseases.

2

Implementing the Module

The five lessons in this module are designed to be

• to experience the process of inquiry and

taught either in sequence, as a supplement to your

develop an enhanced understanding of the

standard curriculum, or as individual activities

nature and methods of science, and

that support or enhance your treatment of specific

• to recognize the role of science in society

concepts in biology. The following pages offer

and the relationship between basic science

general suggestions about using these materials in

and personal and public health.

the classroom; you will find specific suggestions

in the support material provided for each lesson.

What Are the Science Concepts and

How Are They Organized?

What Are the Goals of the Module?

We have organized the activities to form a conceptual

Human Genetic Variation is designed to help

whole that moves students from an introduction

students reach the following major goals

to human genetic variation ( Alike, But Not the Same),

associated with biological literacy:

to an investigation of its biological significance

• to understand a set of basic scientific principles

( The Meaning of Genetic Variation), to a discussion

related to human genetic variation,

of some of the practical implications of human

Table 1. Conceptual flow of the lessons.

Lesson

Learning Phase

Major Concepts

Lesson 1

Engage

Humans share many basic characteristics, but there is a wide range

Alike, But Not

of variation in human traits. Most human traits are multifactorial:

the Same

They are influenced by multiple genes and environmental factors.

Lesson 2

Explore

The ultimate source of genetic variation is differences in DNA

The Meaning

sequences. Most of those genetic differences do not affect

of Genetic

how individuals function. Some genetic variation, however, is

Variation

associated with disease, and some improves the ability of the

species to survive changes in the environment. Genetic variation,

therefore, is the basis for evolution by natural selection.

Lesson 3

Explain

One of the benefits of understanding human genetic variation at a

Molecular

molecular level is its practical value for helping us understand and

Medicine

treat disease. The development of effective gene-based therapies

Comes of Age

is an exciting outcome of human genetic research. These therapies,

however, are potentially many years away for many diseases.

Lesson 4

Elaborate

Studying the genetic and environmental factors involved in

Are You

multifactorial diseases will lead to increased diagnosis, prevention,

Susceptible?

and treatment of disease.

Lesson 5

Evaluate

Our growing understanding of human genetic variation will allow

Making

us to identify genes associated with common diseases such as

Decisions in

cancer. Genetic testing to identify individuals who have variations

the Face of

that make them susceptible to certain diseases can help people

Uncertainty

make decisions in uncertain circumstances and holds the prospect

for more effective prevention and treatment. However, this

capability also raises difficult questions that illustrate the personal

and social implications of biological research.

3

Human Genetic Variation

genetic variation for the treatment of disease

Despite their current popularity, many teachers

( Molecular Medicine Comes of Age and Are You

think of active, collaborative, and inquiry-based

Susceptible? ), and, finally, to a consideration of

learning rather generically. Defining these three

how understanding human genetic variation

key terms specifically will provide a foundation

can affect the decisions we make about our

on which we can build a detailed description of

own health ( Making Decisions in the Face of

the instructional approach that the five lessons

Uncertainty). Table 1 summarizes the sequence

in this module advocate and implement.

of major concepts addressed by the five lessons.

Conceptually the broadest of the three, active

Although we encourage you to use the lessons

learning means that students are involved in

in the sequence outlined in Table 1, many of

“doing things and thinking about the things

the lessons can be taught individually, to

they are doing” (Bonwell and Eison, 1991, p. 2).

replace or enhance a more traditional approach

These authors elaborate by listing the following

to the same or related content. Table 2 provides

characteristics typically associated with strategies

recommendations for inserting the lessons into

that deserve to be labeled “active”:

a standard high school curriculum in biology.

• Students are involved in more than listening.

• Instructors place less emphasis on transmitting

How Does the Module Correlate

information and more emphasis on developing

with the National Science

students’ skills.

Education Standards?

• Students are involved in higher-order thinking

Human Genetic Variation supports teachers in

(for example, analysis, synthesis, and

their efforts to reform science education in the

evaluation).

spirit of the National Research Council’s 1996

• Students are engaged in activities (for example,

National Science Education Standards (NSES).

reading, discussing, and writing).

Table 3 lists the content and teaching standards

• Instructors encourage students’ exploration of

that this module primarily addresses.

their own understandings, attitudes, and values.

How Does the BSCS 5E Instructional

Most teachers endorse the use of active learning.

Model Promote Active, Collaborative,

We know intuitively, if not experientially and

Inquiry-Based Learning?

explicitly, that learning does not occur through

The activities in this module are designed to

passive absorption. But often, we do not realize

offer students the opportunity to participate in

how active students must be for real learning to

active, collaborative, and inquiry-based learning

occur. Typically, the answer to this question is

in biology. But what do these terms mean?

more active than we might expect.

Table 2. Correlation between lessons and high school biology topics.

High School Biology Topic

Lesson 1

Lesson 2

Lesson 3

Lesson 4

Lesson 5

evolution and natural selection

ethical issues related to genetic testing

and screening

human genetic variation including

genetic disorders

multifactorial traits

4

Table 3. Correlation to the National Science Education Standards.

A. The Content Standards

Standard A: As a result of activities in grades 9–12,

Correlation to Human

all students should develop abilities necessary to do scientific inquiry

Genetic Variation

and understandings about scientific inquiry.

• Identify questions and concepts that guide scientific investigations.

Lessons 1, 2 ,and 3

• Use technology and mathematics to improve investigations and communications.

Lesson 2

• Formulate and revise scientific explanations and models using logic and evidence. Lessons 2 and 3

• Recognize and analyze alternative explanations and models.

Lessons 2 and 3

• Communicate and defend a scientific argument.

Lesson 3

• Understanding scientific inquiry.

Lessons 2 and 3

Standard C: As a result of their activities in grades 9–12,

Correlation to Human

all students should develop understanding of the cell and

Genetic Variation

the molecular basis of heridity.

• Cells store and use information to guide their functions.

Lessons 2, 3, and 5

• Cells can differentiate, and complex multicellular organisms are formed as a

Lessons 2 and 5

highly organized arrangement of differentiated cells.

• In all organisms, the instructions for specifying the characteristics of the

Lessons 2, 3, and 5

organism are carried in the DNA.

• Changes in DNA occur spontaneously at low rates.

Lessons 2, 3, and 5

• Species evolve over time.

Lesson 2

Standard E: As a result of activities in grades 9–12,

Correlation to Human

all students should develop abilities of technological design and

Genetic Variation

understandings about science and technology.

• Scientists in different disciplines ask different questions, use different

Lesson 3

methods of investigation, and accept different types of evidence to support

these explanations.

• Science often advances with the introduction of new technologies.

Lesson 5

• Creativity, imagination, and a good knowledge base are all required in the

Lessons 1–5

work of science and engineering.

• Science and technology are pursued for different purposes.

Lesson 5

Standard F: As a result of activities in grades 9–12,

Correlation to Human

all students should develop understanding of

Genetic Variation

• personal and community health.

Lessons 2, 3, 4, and 5

• natural and human-induced hazards.

Lessons 2, 3, 4, and 5

• science and technology in local, national, and global challenges.

Lesson 5

Standard G: As a result of activities in grades 9–12,

Correlation to Human

all students should develop understanding of

Genetic Variation

• science as a human endeavor.

Lesson 3

• nature of scientific knowledge.

Lessons 1–5

• historical perspectives.

Lesson 2

5

Implementing the Module

Human Genetic Variation

Table 3. Correlation to the National Science Education Standards.

B. The Teaching Standards

Standard A: Teachers of science plan an inquiry-based

Correlation to

science program for their students. In doing this, teachers

Human Genetic Variation

• develop a framework of yearlong and short-term goals for

Each lesson provides short-term objectives

students.

for students. Tables 1, Conceptual Flow of

the Lessons, and 6, Suggested Timeline for

Teaching the Module, also help teachers plan.

• select science content and adapt and design curriculum to

Using the modules helps teachers update

meet the interests, knowledge, understanding, abilities, and

their curriculum in response to their students’

experiences of students.

interest in this topic.

• select teaching and assessment strategies that support

The focus on active, collaborative, and

the development of student understanding and nurture a

inquiry-based learning in the activities helps

community of science learners.

teachers meet this standard.

Standard B: Teachers of science guide and facilitate learning. Correlation to

In doing this, teachers

Human Genetic Variation

• focus and support inquiries while interacting with students.

All of the activities in the module encourage

and support student inquiry.

• orchestrate discourse among students about scientific ideas.

All of the activities in the module promote

discourse among students.

• challenge students to accept and share responsibility for their All of the activities in the module challenge own learning.

students to accept and share responsibility for

their learning.

• recognize and respond to student diversity and encourage all Combining the BSCS 5E Instructional Model students to participate fully in science learning.

with active, collaborative learning is an

effective way of responding to the diversity of

stu dent backgrounds and learning styles.

• encourage and model the skills of scientific inquiry, as well as Annotations for the teacher throughout the the curiosity, openness to new ideas and data, and skepticism activities provide many suggestions for how that characterize science.

teachers can model these attributes.

Standard C: Teachers of science engage in ongoing

Correlation to

assessment of their teaching and of student learning.

Human Genetic Variation

In doing this, teachers

• use multiple methods and systematically gather data about

Each lesson has a variety of assessment

student understanding and ability.

components embedded within its structure.

Annotations draw teachers’ attention to these

opportunities for assessment.

• analyze assessment data to guide teaching.

Annotations provide answers to questions

that can help teachers analyze student

feedback. The annotations also suggest ways

for teachers to change their approach to

students, based on that feedback.

Standard E: Teachers of science develop communities of

Correlation to

science learners that reflect the intellectual rigor of scientific Human Genetic Variation

inquiry and the attitudes and social values conducive to

science learning. In doing this, teachers

• display and demand respect for the diverse ideas, skills, and

The answers provided for teachers model

experiences of all students.

these qualities.

• nurture collaboration among students.

All the activities are designed to be completed

by students working in collaborative groups.

• structure and facilitate ongoing formal and informal discussion All the discussions in the lessons model the based on a shared understanding of rules of scientific discourse.

rules of scientific discourse.

• model and emphasize the skills, attitudes, and values of

The annotations for teachers provide many

scientific inquiry.

suggestions about how to model these skills,

attitudes, and values.

6

The activities in this module were designed with

not involve students in active ex