Journey Untold My Mother's Struggle with Mental Illness by Yassin S. Hall and Loán C. Sewer - HTML preview

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CHAPTER NINE

On June 6, 2009, I received a phone call that would soon alter my

world, yet again. My grandmother called to tell me that my mother

had been hospitalized but she did not indicate that anything was time

sensitive or critical. When she got around to telling me what was

happening, I learned that my mother had been diagnosed with Stage

4 breast cancer. As Mama recounted the details, all I could think was

I was about to lose my mother again, and this time for good. You

see, by this time Mommy had been coming and going between my

grandmother’s house and the streets. She would leave for most of the

day then return home in the evenings, but she was basically home.

My mother was receiving food stamps and my grandmother would

shop for her so that she had adequate food to eat. One day, my

grandmother noticed that she had not been out for quite some time

and went to check on her. Each time she did so, my mother would

say she was resting and did not feel like going out, but she would

usual y come upstairs to the main part of the house to eat. This went

on for about one month until my grandmother noticed a strange

odor whenever my mom was nearby. Mama thought it was because

she wasn’t bathing on a regular basis and told her so, but my mom

just stared blankly at her.

During one of the shopping trips, my mother went along and my

grandmother noticed that Mommy didn’t have the strength to walk

alongside her. Keep in mind that this was a woman who walked miles

every day just because, so not being able to keep up with an eighty-

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MY MOTHER’S STRUGGLE WITH MENTAL ILLNESS

something-year-old woman was cause for speculation. As a matter of

fact, she was sitting every chance that she got, so Mama told my

mom that she was taking her to the emergency room. My mother

refused; more than once. Since the odor and the fatigue persisted, my

grandmother continued to insist that Mommy see a doctor, and each

time she would refuse. Not sure what else to do, my grandmother

called my mom’s mental health counselor to have her committed out

of concern for her overall health. She didn’t like the way my mother

looked or the lack of energy she had and she had begun to fear that

my mother was very sick.

Ultimately, my mother told my grandmother that she would not seek

medical attention unless forced to do so by the courts, so Mama had

to get a court order to have my mother admitted to the hospital for a

check-up. Well, when that day finally came, the police showed up at

the front door to escort them to the hospital. They, too, smelled this

foul odor and questioned where it was coming from, but no one

could figure it out. When they got my mother to the hospital, she

went through the admission process and was assigned a nurse. As she

was undressing to have a bath, the nurse let out a blood curdling

scream. As everyone came running, it became apparent why the odor

was so strong – both of my mother’s breasts were rotting away and

she was completely oblivious to it. As nauseating as this thought is, it

appears that my mother didn’t even know she should be in pain. Her

primary comment to the hospital staff was to ask why they were

keeping her there and then say she was going home. Because she

refused treatment, the attending staff had to give her a sedative so

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Author: Yassin S. Hall | Co-Author: Loán C. Sewer

that they could ascertain the severity of her condition, something that

even she didn’t understand. After my mother was evaluated, she was

admitted to the hospital for treatment. It was during her two week

stay there, that my mother’s mind came back long enough for her to

realize that she was really sick.

The severity of her condition became even clearer, after the doctor

explained that her cancer was in an advanced stage, and it would be

necessary for her to start having chemotherapy at the Cancer

Treatment Center. However, despite the doctor’s explanation, my

mother decided that she did not want the treatment, and declared

that no one was putting that kind of poison in her body. Once again,

my grandmother had to go to court, after speaking with the

psychiatrist, to get my mother the treatment she needed. The courts

gave my grandmother the legal authority to get the treatment going,

but it still took some convincing to get Mommy to say yes. Bear in

mind, it had been two to three weeks with no treatment for breast

cancer. It wasn’t until the courts gave my grandmother legal custody

of my mother, that she finally agreed to treatment. I flew down to St.

Thomas to see her towards the end of her battle with the cancer and

in a rare moment of lucidity my mother looked me in the eye and

called me by my actual name. After thirty-plus years of longing to

hear her speak to me with the love of someone who gave birth to me,

it was on her death bed that she finally set me free. Then, just like

that she was back in her mental shell, but I felt a sense of peace wash

over me that would carry me through the days ahead.

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JOURNEY UNTOLD: TWISTED LOVE –

MY MOTHER’S STRUGGLE WITH MENTAL ILLNESS

At her funeral I was able to say goodbye by writing my thoughts in a

farewell letter to my mother:

A LETTER TO MY MOM by Yassin Sirri Hal

(reprinted in its entirety)

For the 12 years that I have truly known you as my mom, you were the most

beautiful, smart, loving, spiritual, funniest and the sil iest mom I know. I

remember so much, our spiritual Bob Marley nights and our times just sitting on

the waterfront singing. I even remember the very first movie you took me to. The

Harder They Come – Jimmy Clif Movie. These are the times I will treasure for

the rest of my life.

You made me who I am today and I am proud to say that I am your daughter. I

have NEVER been ashamed of this.

I was told that when I was born you were so happy, you wanted to find the most

perfect name for me. I remember in my room you had the words peaceful and

loving al over it, the meaning of my name as I was told by you.

I remembered as a child I real y hated my name LOL. When asked my name I

always got, oh that's different or what did you say.. I remember thinking Gosh

can I just be normal LOL.

Now as an adult I LOVE my name, it symbolizes my uniqueness, my being, my

individuality, my belonging, my destiny, my inner and outer self, it IS who I am. I

am proud to say my mom gave me that name and I thank you.

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Author: Yassin S. Hall | Co-Author: Loán C. Sewer

As I young child, I wondered why you weren't like the other moms, but gently

tossed the question out my mind because I too was not like the other kids. I never

cried, I always laughed regardless of the situation. It was easier for me to laugh

than to cry. I just knew you as my mom.

I remember the times you sat with me on the waterfront and we laughed and

laughed at nonsense [LOL] but my biggest memory is when you would sing Three

Little Bird’s by Bob Marley and I would sing along. As I sit here and write this

I am listening to the words imagining you singing it to me as the tears pour down

my face.

After losing you mental y, I could never listen to the song ever until 2008 on your

birthday. I played it over and over again and cried and cried. I feel it was when I

became a true woman and that was my moment.

I remember every time you sang this part "cause every little thing gonna be al

right!" you would touch my nose and smile at me. It was OUR MOMENT A

MOMENT I WILL TREASURE FOREVER.

Though not all moments I would like to remember BIG SIGH AND

LAUGHTER! ! Through all my life's most embarrassing moments I stil

didn't quiver or cry. Because of you no matter what has been said or done it could

never be worse than those embarrassing moments I have had with you.

Thank you for those moments as well (big sarcasm) ROTFL

Throughout life people would say to me "what ever happened to your mom? wel

please just don't let IT happen to you! Or hope you don't end up like your

mother.

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For years this is the only thing that ever bothered me.

I can't tel you how many times I wanted to just slap them! !

What people don’t realize is that your mind was free and you were happy, while

we live the everyday life of worrying about bil s and the struggles of life you had no

worries. Whenever I saw you, you were smiling and cracking yourself up. I used

to want you to share the joke with me so I can laugh too! You loved the ocean

and marveled about its beauty.

Many of you have looked at her as if Mental Il ness is a disease. Mental illness

is NOT a disease, it's not something that is contagious, and it's not hereditary

though my kids wil think it is LOL AND IT'S CERTAINLY NOT A

JOKE ALTHOUGH, I JOKE ABOUT IT CAUSE THAT'S HOW I

COPE. To me, through everything you have taught me is that life is funny and

laughter is therapy.

This is a very thin line between sane and insane. ANYONE CAN CROSS

THAT LINE! ! Trust me, now I know it was God's way that I had to see you

go through your stages for me to endure my chal enges of life.

It was seeing you that kept my head focus, focused for my kids.

I always asked why did you not think about me? Why didn't you stay sane and

fight it for me? I asked that question alot in life.

The answer is now very simple to me, because for al I have been through and wil

continue to go through I NEED TO STAY HAPPY AND STAY SANE

FOR MY KIDS! You ARE my guiding light. ..

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Author: Yassin S. Hall | Co-Author: Loán C. Sewer

To al who wonder what happen, she can't speak for herself and I can't speak for

her, and I too asked the very same question, one thing I can say is TRUE

LOVE IS A POWERFUL WEAPON. When used or misused it can

strike a dangerous blow. After been dealt with that weapon myself I understand

the why, the how, and I now know and understand WHAT happened. . .

I am grateful that I got the time to say I love you and in your own way you told

me you loved me. I shared the tears with you that flowed when I saw you.

Your tears are my tears now. I can look back now and say you were a good

mother, you made me the only mom I know how to be today.

I BRIEFLY had that traditional motherly love from you AND I have always

had that daughterly love for you.

MOM I LOVE YOU AND AS BOB WOULD SAY:

“Rise up this mornin',

Smiled with the risin' sun,

Three little birds

Pitch by my doorstep

Singin' sweet songs

Of melodies pure and true,

Sayin', ("This is my message to you")

Singin': "Don't worry 'bout a thing,

'Cause every little thing gonna be all right." **

Footnotes: LOL is text speak for Laughing Out Loud. ROTL is text speak for

Rolling on the Floor Laughing. **Lyrics by Robert Nester Marley “Three Little

Birds” on Album Exodus album released by Bob Marley and the Wailers,

1980.

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JOURNEY UNTOLD: TWISTED LOVE –

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Author: Yassin S. Hall | Co-Author: Loán C. Sewer